FIN Fabry Expert Meeting 2025

 Fabry International Network is pleased to announce that the FIN Fabry Expert Meeting 2025 will be held in Lisbon, Portugal on April 25th and 26th. The program will open with a Sharing Best Practices for our members on April 25th followed by a day of presentations  and workshops on Saturday April 26th from professionals specializing in Fabry disease worldwide.
An exciting program is in the making and we look forward to seeing you there! Make sure to check this page regularly for more updates.
Accommodation and events will be at the Tivoli Oriente Lisbon . The registration fee to participate in the expert meeting is €185, accommodation cost is €174 (single use) per night breakfast and city tax included.
Join us for the FIN Fabry Expert Meeting 2025
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Program

Click on the button to see the program!

Speakers

Dr Uma Ramaswami, UK
Dr Patricio Aguiar, Portugal
Dr Dawn Laney, USA
Dr Ashwin Roy, UK
Prof Dominique Germain, France
Prof Dominique Germain, France

Frequently Asked Questions

Learn from Fabry Experts and meet other participants who share common concerns and experiences. The goal of this meeting is to educate Fabry patient organisation representatives.

The meeting is intended for representatives of our member organisations; people living with Fabry, family members, parents of kids with Fabry, caregivers and patient advocates. Individuals working with Fabry disease such as healthcare providers and pharmaceutical industry representatives who FIN has established a partnership with are welcome. Industry representatives can be present at the meeting but will not be allowed to participate in the workshops and meetings organised exclusively for our members.

The registration fee to participate in the expert meeting is €185, accommodation cost is €174 (single use) per night breakfast including breakfast and city tax. Travel expenses to the meeting and back home are not included. FIN will provide a travel bursary of €100 for Europe and €150 overseas per member organisation.  Also, for the first 10 member organisations to register, we offer one delegate from each member organisation a free registration plus three nights’ accommodation with check in on April 24th and check out April 27th. Additional delegates will be charged a registration fee and accommodation.

Accommodation and events will be at the Tivoli Oriente  in Lisbon, Portugal which is 10 minutes away from Lisbon Airport by car.

This meeting is a great educational and networking opportunity that benefits everybody. The registration fee goes toward the cost of meals throughout the meeting, facility, plus many additional meeting expenses.

All rooms accommodate up 2 people. The room cost is €174 including tourist tax  for single use, breakfast included.

To register, click the registration button and complete the on-line registration form before January 31st, 2025.

The registration deadline is January 31st, 2025. Note that should you cancel your registration before February 5, 2025 there will be no cancellation costs. After that date, confirmed registration and accommodation will be charged in full.

If you wish to extend your stay, you can, please share this information in the registration form and we will work with the hotel to confirm this. Note that these accommodation costs are to be paid directly to the hotel.

Staying at the same hotel the meeting is held at, is important and lends itself to the very purpose of the meeting.

The registration fee will be the same and there is no adjustment for days not attended.

If you cancel your registration before February 5th, 2025 there will be no cancellation costs.  After that date, confirmed registration and accommodation will be charged in full.

An invoice (per organisation) will be generated and provided to you after the event via email.

Contact us at coordinator@fabrynetwork.org and we will be happy to assist you.

With the support of

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