News from Chiesi
Charlotte2023-06-29T15:17:17+02:00Chiesi Global Rare Diseases and Protalix BioTherapeutics Announce European Commission Authorization of PRX-102 (pegunigalsidase alfa) for the Treatment of Fabry Disease
News from Sanofi
Charlotte2023-06-29T14:57:10+02:00Sanofi dedicated their Fabry Awareness Month Campaign to highlighting the psychological impact of Fabry.
Fabry Outcome Survey- Final Report 2022
Charlotte2023-06-29T11:44:31+02:00I am pleased to introduce the final Fabry Outcome Survey (FOS) report for patients and caregivers, which is based on data collected within FOS from 5 October 2001 to 30 September 2022. The aim of this registry, funded by Takeda, was to collect information on patients with Fabry disease. [...]
News from Freeline
Charlotte2023-04-07T16:08:54+02:00Freeline has made the difficult decision to not progress our Fabry disease program further
News from Sanofi
Charlotte2023-03-17T13:47:28+01:00Orphanet Journal of Rare Diseases recently published an in-depth history of the Sanofi Rare Disease Registries.
Sad news from Fabry Korea
Charlotte2023-03-17T13:41:33+01:00It is with great sadness that we learned of the passing of BongKi Lim, Fabry Korea's chairman for the past 22 years.