Welcome to the GRIT Study
Reejeel2021-05-20T15:46:17+02:00Getting global Rare disease Insights through Technology Join the first Canadian app-based clinical trial for patient with metabolic disorders
Fabry Women’s Day is coming up!
Reejeel2021-09-16T16:16:24+02:00April 3rd is International Fabry Women’s Day! Join us in celebrating this special day.
FIN Expert Meeting 2021
Reejeel2021-09-16T16:16:33+02:00Registration now open We are very pleased to invite you to our first online FIN Expert Meeting on April 24th, 2021!
Treatment needs and expectations for Fabry disease in France
Reejeel2021-05-20T15:46:20+02:00development of a new Patient Needs Questionnaire In France, two associations actively represent Fabry patients, participate in and promote medical research: Association des Patients de la Maladie de Fabry (APMF, apmf-fabry.org) and Vaincre les Maladies Lysosomales (VML, www.vml-asso.org).
Learning from the Pandemic to Improve Care for Vulnerable Communities
Reejeel2021-05-20T15:46:20+02:00The Perspectives and Recommendations from the Rare Disease Community' Raquel Castro, Erwan Berjonneau and Sandra Courbier from Eurordis have published an editorial piece on the International Journal of Integrated Care entitled: