New FIN President
Charlotte2023-11-24T15:09:59+01:00Lut de Baere resigned as FIN President, Mary Pavlou elected as successor!
News from Chiesi
Charlotte2023-06-29T15:17:17+02:00Chiesi Global Rare Diseases and Protalix BioTherapeutics Announce European Commission Authorization of PRX-102 (pegunigalsidase alfa) for the Treatment of Fabry Disease
News from Sanofi
Charlotte2023-06-29T14:57:10+02:00Sanofi dedicated their Fabry Awareness Month Campaign to highlighting the psychological impact of Fabry.
Fabry Outcome Survey- Final Report 2022
Charlotte2023-06-29T11:44:31+02:00I am pleased to introduce the final Fabry Outcome Survey (FOS) report for patients and caregivers, which is based on data collected within FOS from 5 October 2001 to 30 September 2022. The aim of this registry, funded by Takeda, was to collect information on patients with Fabry disease. [...]
News from Freeline
Charlotte2023-04-07T16:08:54+02:00Freeline has made the difficult decision to not progress our Fabry disease program further
April is Fabry Awareness Month!
Charlotte2023-06-29T15:58:54+02:00April is Fabry Awareness Month! Join FIN in celebrating the #FabryHeroes!
News from Sanofi
Charlotte2023-03-17T13:47:28+01:00Orphanet Journal of Rare Diseases recently published an in-depth history of the Sanofi Rare Disease Registries.